PATIENT FORUM - I: "RARE DISEASES" (only in Spanish)

Wednesday, September 28th (10h00-11h00)
Room C

Sponsored by:

In BioSpain 2016, ASEBIO will dedicate a space to the field of minority or rare diseases because these are a health challenge due to they affect millions of people. This round table will have the point of view of the different agents to offer their vision on rare diseases as administration, health professionals, patients and the pharmaceutical industry . Therefore we hope emerging initiatives and recommendations that will result in better care for patients with rare diseases. .


Josep María Espinalt: Country Manager, ALEXION PHARMACEUTICALS (Spain)


Juan Carrión: President, FEDER - Spanish Federation of Rare Diseases (Spain). "Perspective of the demands and needs of the patient".
Josep María Campistol: CEO, HOSPITAL CLÍNIC BARCELONA (Spain). "Access to orphan drugs : the manager's visión"
Francesc Palau: Director, Dept. of Genetic & Molecular Medicine and Pediatric Institute of Rare Diseases – IPER. SANT JOAN DE DÉU CHILDREN'S HOSPITAL (Spain). 'Integrative approach to the diagnosis and treatment of rare diseases"
Oscar Millet: Principal Investigator, CIC BioGUNE Spain).